Adam is an energetic, smiley, positively crazy 15-year-old. Unfortunately, he cannot be fully happy due to becoming sick with a severe and rare Recklinghausen disease, also known as type 1 neurofibromatosis.

The boy was born with several birthmarks on his body (he currently has about 40), decreased muscle tone, flat feet and knee valgus. Rehabilitation recommended by specialists did not bring the expected results, and numerous medical consultations did not answer the question of what was actually going on with Adam. It was not until October 2016 that the correct diagnosis was made.

AAdam has serious problems because of memory loss, he loses his balance, which results in numerous falls, he suffers from photophobia and frequent severe headache. The results of the CT scan of the spine revealed numerous clusters of neurofibromas, so he underwent the necessary surgery in a clinic in Zakopane – a vertical stabilizer was inserted (the tumors were not removed, as they entwine the spine close to the spinal cord). Neurofibromas wreak devastation in the body, including the head and eyes, hence the enormous risk of optic glioma.